She Runs A Good Race

mothering is a marathon

Baby, You Have Come So Far

on June 27, 2012

Once you hardly moved.  Now you are running.

Once you hardly cried.  Now your cry is heard and understood.

Once you barely spoke.  Now you ask a million-seventy-two questions per day.

Once you could not hold anything in your poor low-tone fingers.  Now you can write two sentences, easily.

Once you could not read the pages of the books you flipped through obsessively.  Now you read. Out loud. To us. All the time.

Once you needed oxygen nightly.  Now you are the oxygen that brings such depth to our family.

Once you needed a feeding tube.  Now we tell you to slow down when you eat your meals.

Once you were a “floppy baby.”  Now you climb rock walls and ropes courses (in harnesses, that is) with amazing tenacity and fearlessness.

Once you needed so many doctor and specialists.  Now you have only two.

Once you just sat there and looked around, peacefully, but not engaged.  Now you play, talk, socialize, giggle and have dance parties with us.

Once you were a diagnosis. Now you are my beloved son who outshines any diagnosis or label.

HAPPY 9TH BIRTHDAY TO RYAN, OUR SWEET LITTLE PRINCE!!!

YOU.   HAVE.   COME.   SO.   FAR.

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23 responses to “Baby, You Have Come So Far

  1. Liz says:

    Happy happy birthday sweet Ryan. We are all so lucky to have you in our lives! ENJOY. You have worked hard and deserve it ALL! XO

  2. Liz, You are my faithful first-commenter every time!
    And yes, we are all lucky to have Ryan, and kids like him, in our lives.

    • Liz says:

      I’m the early bird just don’t expect me to stay up late. ; ) you words get me going mentally in the morning so keep them coming my friend!

  3. Carla Puky says:

    Happy Birthday, Ryan! My, what a VERY special person you are! =)))
    My love to you on this day, all the way from Budapest, Carla XOXO

  4. Happy Birthday to an amazing boy! That is the cutest picture…that sweet smile — what a bright light you are, Ryan.

  5. Erin V. says:

    Happy Birthday Ryan! I love your smile 🙂

  6. Jan says:

    Tears in my eyes swelling. I am always proud of him when he works hard which he vows so often ! He’s a star in my eyes.

  7. Suzie Lind says:

    This brought tears of joy to my eyes knowing the journey you have all been on and how much love Ryan has added to your family. And my friend… You yourself have come far along with him. Love you so much.

  8. Jeannette says:

    Happy Birthday Ryan!!!!

  9. KIrsten Hanson says:

    Absolutely beautiful Jess!
    Ryan.. The Handsomes LOVE you!!

  10. Deanne says:

    I remember praying for the Patay family and this little baby boy Ryan but I didn’t even know who you all were. I can’t believe that was 9 years ago! Happy bday sweet boy! You are loved and prayed for by many.

  11. Di says:

    Lovely, lovely tribute from mom to son! I too, had tears, reading your heartfelt piece.
    Happy Birthday, Ryan! You look like your beautiful mom!

  12. Aunt Ju says:

    Wow, that’s a great birthday card! Thanks be to God, and thanks to that sweet, most-thankful fellow, Ryan. Can’t wait to celebrate in a couple weeks.

  13. Julie Casey says:

    Happy Birthday Ryan! …Can I just copy this next Feb. when my Ryan turns 9? lol

  14. Amy Groshell says:

    Jess – by far my favorite piece of all! What amazing accomplishments. What an amazing Mom little Ryan has!!!

  15. Lisa says:

    Beautiful, Jess. Ryan is blessed with exceptional parents. Happy Birthday, Ryan!

  16. Beautiful poem, Jessica! We shared this with other parents of children with PWS on our Facebook page. You’re welcome to check it out here: http://on.fb.me/H7dL6R

  17. Wendy Rosato says:

    This makes me so happy……. crying now! He’s so lucky to have you and your whole family. He’s come so far. 🙂

  18. Mom, tears are coming out of my eyes right now. Ryan is such a great brother and I love him soooo much!! xoxoxoxo Luke 🙂

  19. zochkamom says:

    Reblogged this on zochkamom's Blog and commented:
    Love this poem as I felt and truly understood every word, being a new mom of daughter diagnosed with Prader-Willi. I just don’t know what to expect and always wonder will she ever get the strength to run around with all the other kids and your poem gives me hope that she definitely will get there in time. Thanks for sharing!

  20. zochkamom says:

    Love this poem as I felt and truly understood every word, being a new mom of daughter diagnosed with Prader-Willi. I just don’t know what to expect and always wonder will she ever get the strength to run around with all the other kids and your poem gives me hope that she definitely will get there in time. Thanks for sharing!

  21. Samantha says:

    I just found your blog, and I want to let you know how much it has incouraged me!! My son was also diagnosed with PWS. He is 3 years old and has already thrived so much! I can’t wait to see him come as far as your Ryan has!!! 🙂

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